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Virginia is my second home

  • Jan 28
  • 2 min read

At this point, I am starting to feel like a move to Virginia would be my smartest move, with how many times we have had to return. In November of 2025, my tube is in, but it hurts and is hard to use consistently, my SMAS pains have returned, my MALS pains have never went away, and things are still hard to swallow. Dr. Fowlkes tells me to come back down, he is going to fix my tube placement run a bunch of tests, and figure out what exactly is wrong with me. We load up the car and head out and spend Thanksgiving in a hotel in Virginia. After some conflicting information between what we were told before we came and what we were told once we got there, it was a long wasted 16 days. During our stay, my feeding tube fell out. It happened in the middle of the night so I had to go to the ER across the street from our hotel. It closed up quickly and was not able to be saved. They sent me home as I had an appointment with Dr. Fowlkes the next day in office. He said that based on my labs I do not need a feeding tube at this time...granted I am about 92lbs, I can't eat, I can't drink anything besides blue powerade or propel without getting sick, and that was my ONLY form of nutrition. He tells me I might as well head back to Indiana. So I am back in my home state, with no doctors that will operate on me to put in a feeding tube stating they don't "feel comfortable" because of the alvear/fowlkes procedure I had done. I have no doctor to help me or even try to correct any of my issues. I can hardly leave my bed. I have three boys that need their mommy an a husband that deserves his wife to be more present. He would never EVER say that, and he literally does everything for me, but I feel so worthless. I felt like I was out of hope and had nowhere to turn or even a single lead. I relied on my faith and prayed loud and hard to God asking him to guide me, and in an almost unbelievable turn of luck, my phone rang....

 
 
 

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